Archive for the grassroots category

Cycling The 6

February 1st, 2011

Dr. Fabes has embarked on a five year bicycle ride around the world to raise awareness about the abundance  of preventable Neglected Tropical Diseases (NTDs)  around the world.  His route around the planet will pass through many of the regions most affected by NTDs. Dr. Fabes is an expert adventurer and long distance biking. When he was 17 years old, he and his older brother took a neophyte bike trip down to Chile, vertically the longest country in South America. When he returned to the UK, he took up DJing as DJ Sketchy Bwoy, moved on to get his medical degree and worked for two and a half years in the Accident and Emergency, Intensive Care and Renal Units at Guys and St Thomas Hospitals in London.  His professional interest in tropical medicine and infectious disease and naturally adventurous spirit are is what fueled this journey and share his progress with the world.  En route, he plans to visit a number of remote hospitals and clinics in order to witness firsthand the work of various health workers in different environments treating patients with the NTDs in an effort to gain some understanding of health care systems and the contrasting problems encountered in different areas of the planet.  Another goal of his trip is to raise money for Merlin, the only specialist UK charity to provide medical relief assistance to vulnerable nations recovering from disasters and turmoil.

Check out his status at

New Video from Notre Dame NTD Awareness Group

January 31st, 2011

ND Fighting NTDs is a student-run group from the University of Notre Dame. They have contributed to End the Neglect in the past, most recently with this blog post highlighting their Annual NTD Awareness week at Notre Dame last December. Today we are featuring a video that they created as an advocacy tool to encourage others to do their part in the fight against NTDs.

**Warning: Graphic content:

Weekly Blog Round-Up! 11/29-12/2

December 3rd, 2010

This week on End the Neglect…

1. Alanna Shaikh our weekly guest blogger wrote for us about the Luanda Declaration and its impact on NTDs, as well as she did a blog about the improvements and shortfalls of HIV/AIDS in 2010. 2. Notre Dame’s club, ND fighting NTDs, wrote a blog for us about their activities during the first annual NTD awareness week. 3. Erin Hohlfelder from ONE, wrote about the correlation of infections between HIV/AIDs and Schistosomiasis. 4. Dorothy Bishop, a professor at Oxford wrote about the impact neurological impact of NTDs on children.

Notre Dame Fighting Neglected Tropical Diseases!

December 1st, 2010

By: Emily Conron

For a club that’s only officially been in existence for about two months, Notre Dame: Fighting Neglected Tropical Diseases( ND Fighting NTDs) has made a huge splash on Notre Dame’s campus! The first annual NTD Awareness Week wrapped up on Sunday, November 14, 2010, after seven days of successful events. At the kick-off event on Monday and Tuesday, volunteers from ND Fighting NTDs handed out SillyBandz shaped like bugs (reminiscent of the parasites that transmit NTDs) and brochures about the diseases to students on their way into DeBartolo Hall during the passing period before morning classes. The event revealed just how unaware the student body is about NTDs, but everyone seemed genuinely interested in our club and eager to learn about the diseases, asking questions and offering whatever spare change they had in their pockets to support the cause. The overwhelmingly positive response made our hoarse voices and cold fingers totally worth it! Read more: Notre Dame Fighting Neglected Tropical Diseases!

Rwanda National Campaign Against NTDs!

November 30th, 2010

The Ministry of Health and the Access Project are launching their fifth campaign to fight against Neglected Tropical Diseases (NTDS). Starting November 29th- December 2, all 29 districts of Rwanda will have access to mass drug administration directly targeting NTDs. An estimated 4.5 million people are expected to receive de-worming tablets during this week. Other health initiatives will be: polio vaccinations for children under 5, mosquito nets for pregnant women and, vitamin A for children 6 months to 5 years old.

To learn more about this initiative and others please contact The Access Project at: In Rwanda: Raissa Kalinganire: In the USA: Meredith Stricker:

Full press release available here.

May the PHONE be with you!

November 16th, 2010

By: Jennifer Segal

On the heels of last week’s Mhealth Summit here in DC, last night I attended a roundtable discussion hosted at the Johns Hopkins University called: On the Move: The Power of Mobile Communication. Panelists included five mobile communication experts: Alan Rosenblatt, Associate Director, Center for American Progress Adam Segal, Founder/President, The 2050 Group Adele Waugaman, Senior Director, UN Foundation Technology Partnerships; Communications Director, mHealth Alliance Josh Nesbit, Executive Director, Frontline SMS: Medic Katherine Maher, ICT Program Officer

The diverse group of panelists made for fascinating discussions and Q & A about the power of mobile communications. Perhaps the most interesting to me personally, were the discussions brought up by Adele Waugaman and Josh Nesbit, the two global health panelists.

Waugaman discussed the initiatives the United Nations is undertaking to improve technologies in health care and disaster emergencies in developing nations. She discussed the important role that cell phones played in the aftermath of the Haiti earthquake. Cell phone shelped find survivors, and guided aid workers and doctors to the areas where most attention was needed., Waugaman leads the $30M partnership between the United Nations Foundation and Vodafone Foundation that invests in the use of mobile technologies to advance UN health and disaster relief programs. Read more: May the PHONE be with you!

Weekly Blog Round Up 10/18-10/22

October 22nd, 2010

This week on End the Neglect

1. We started the week off with a blog from ONE about the importance of global aid initiatives.

2. Alanna Shaikh wrote about a constant difficulty in public health: the amount of time it takes to keep updating people about the work individuals are doing.

3. Thursday we learned about Afghanistans newest deworming initiatives and did a round up of our exciting event this week celebrating last weeks launch of the WHO Report on NTDs.

Notre Dame and Haiti Event Weekend!

October 8th, 2010

It’s been nine months since the worst earthquake in 200 years hit 25 kilometers west of Port-au-Prince.  At a 7.0 on the Richter scale, the earthquake devastated the landscape of the most populous parts of Haiti, and eight days later, aftershocks were still toppling buildings along coastal towns.  For groups working in Haiti, the reality of the vast damage inflicted is only made more daunting by the reality of the work needed to repair and rebuild.

In an effort to shed new light on a situation which had been the focus of intense media attention that began dissipating much faster than those one ground could afford, groups at the University of Notre Dame have put together a series of events on campus.  Notre Dame has a stake in all this.  They’ve been working in Haiti since 1993, conducting mass drug administrations with the goal of eliminating lymphatic filariasis by 2015.  With 2015 inching nearer, Notre Dame’s Haiti Program and its partners have pushed past the obstacles left in the earthquakes wake, and will reach 100% coverage of the entire population in the next round of treatments.

This weekend, the focus is advocacy.  Lectures, personal stories, demonstrations, and a special event at the Notre Dame-Pitt will focus on different aspects of health and survival in the aftermath of the earthquake.  A Tent City exhibit, designed by members of the Haiti Working Group who have recently traveled to Haiti, is being raised on the Irish Green.  Over one-third of people in Haiti are still living in the more than 13,000 temporary shelters that clutter the space where homes used to be.  Along with the demonstration, the event will also pay tribute to those who have supported relief efforts.

So, if you’re a Notre Dame student, staff or faculty, happen to be in South Bend, or need a reason for a road trip, visit the campus and participate in one or all of the activities planned.  Below is a full list of events.  Stop by the Irish Green on Friday, October 8 from 4-7 and Saturday, October 9 from 11 – 3 for the Tent City demonstration.

Haiti Program Pitt Game Weekend Events

Thursday, October 7, 2010

What: Serving in a Field Hospital, Response to Haitis Earthquake Disaster: An Oral Surgeons Perspective

·         Dr. Bill Hoffmann, DDS Metropolitan Oral & Maxillofacial Surgeons, P.A. Minneapolis, MN and Dr. Dan Klauer, DDS South Bend, IN

Where: Room 114 of the Pasquerella Center (ROTC Building)

When: 5:00 pm

Friday, October 8, 2010

What: Tent City – A Student Demonstration – Haiti Working Group

Where: Irish Green (South side if the Debartolo Performing Arts Bldg./South side of campus)

When: 4:00 pm – 7:00 pm and Saturday 11:00 am – 3:00 pm

What: Drugs for Neglected Diseases Initiative and Product Development Partnerships

  • Philip E. Coyne, Jr., M.D., M.S.P.H. CAPT, US Public Health Service, Dept. of Preventive Medicine and Biometrics; Assistant Professor of Tropical Public Health, F. Edward Herbert School of Medicine, ND ‘76

Where: 105 Jordan Hall

When: 1:00 pm

What: In gratitude for your support of the Notre Dame Haiti Program and in solidarity with the people of Haiti, the Notre Dame Alumni Association is hosting a reception for volunteers of the program.

Where: Eck Visitors Center

When: 5:00-6:30 pm (Prior to the Notre Dame vs. Pittsburgh Pep Rally)

Saturday, October 9, 2010

What: Tent City – A Student Demonstration – Haiti Working Group

Where: Irish Green (South side if the Debartolo Performing Arts Bldg./South side of campus)

When: 11:00 am – 3:00 pm

What: President’s Brunch – Recognition of Volunteers – by invitation only

Where: South Dining Hall – West Wing

When: 1:00 pm – 2:00

What: Game Day Recognition by invitation only

Where: On the field – north end zone

When: 2nd time out

Global Network Featured as TwitCause of the week!

September 17th, 2010

By Jennifer Segal

TwitCause, a user handle on Twitter with over 500,000 followers features a new charitable cause every week, with the goal of spreading the word about a specific issue  and impacting their followers to do the same. TwitCause will be featuring the Global Network as the “TwitCause of the Week” next week, 9/20-9/24.

Thanks to a nomination by our Ambassador Alyssa Milano we will be able to reach hundreds of thousands of individuals and give them the opportunity to learn more Neglected Tropical Diseases(NTDs) and how they can help support and take action.

To find out more about the Global Network being featured on TwitCause, join our group page hosted by the Experience Project; sponsor of TwitCause.

MDGs taking over the BIG APPLE

September 14th, 2010

Much like our video featured on the CBS Superscreen in Times Square, the UN Foundation has a number of PSAs that are going to be released on the Toshiba screen in Times Square as a lead up to the highly anticipated Millennium Development Summit next week. This week on End the Neglect, we’ll feature the PSAs that will be looped in Times Square in recognition of next week’s summit. Today’s PSA urges everyone to do their part in ending poverty and disease – take a look! Also, don’t forget to check out our CBS Superscreen video looping in Time Square, over to the right.




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  • About
    • The Global Network for Neglected Tropical Diseases is a major advocacy and resource mobilization initiative of the Sabin Vaccine Institute dedicated to raising the awareness, political will, and funding necessary to control and eliminate the most common neglected tropical diseases (NTDs)--a group of disabling, disfiguring, and deadly diseases affecting more than 1.4 billion people worldwide living on less than $1.25 a day.
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