Archive for the ‘NTDs’ category

MITOSATH: The Mission to Save the Helpless

May 21st, 2012

Inspired by her experiences during her time as a youth corps member in Nigeria’s National Youth Service, Francisca Olamiju founded the Mission to Save the Helpless (MITOSATH).

MITOSATH is a non-governmental development organization (NGDO) dedicated to fighting onchocerciasis (river blindness) and other common neglected tropical diseases (NTDs) such as lymphatic filariasis, schistosomiasis, soil transmitted helminthes, and trachoma in Nigeria. The organization started out with an initial focus to control river blindness in Taraba State, and is now supporting three states (Taraba, Ondo and Lagos) in mapping, baseline surveys, control and elimination of NTDs.

The states of Nigeria. States supported by MITOSATH outlined.

Lt. General T.Y. Danjuma, a former Defense Minister and Chief of Army Staff, is the primary benefactor of MITOSATH.  He emphasized that he is a “businessman, not a scientist or medical doctor or policy maker.” According to General Danjuma, it will take all of us working together to eliminate this disease once and for all from our continent. In a recent inauguration of the T. Y. Danjuma Building named in his honor at the MITOSATH Centre, he also noted why he was a strong supporter of the mission of the organization.

“I know first-hand what river blindness is. I am from Taraba State and I have had a personal experience with this disease and live with relatives and friends who are victims of this scourge. Onchocerciasis – it’s a long, rather difficult name, isn’t it? And the disease is long and difficult too. The worms fester and grow and snake their way through our bodies, and they make life miserable. The itching is horrible and of course, the blindness is something no one deserves. So we now call it river blindness, which is easier to say, but still makes people shiver at the thought.” » Read more: MITOSATH: The Mission to Save the Helpless

Experts Examine How to Eliminate Trachoma at 16th Meeting of WHO-GET2020

May 18th, 2012

WHO wants to get rid of trachoma? That’s right. The World Health Organization (WHO) wants to eliminate trachoma by 2020.

On May 14-16, the 16th annual meeting of the WHO Alliance for Global Elimination of Blinding Trachoma by 2020 (GET 2020 Alliance) was held at the Pan American Health Organization PAHO headquarters in Washington, D.C. Health experts, medical researchers, medical practitioners, and advocates gathered at the GET 2020 Alliance meeting to evaluate the recent progress toward eliminating trachoma and to discuss subsequent steps to ensure that the 2020 target date is met.

Trachoma, an infectious disease of the eye, is the world’s leading cause of preventable blindness. More than 84 million people in 56 countries worldwide have active trachoma, and an estimated 8million have lost their sight due to complications from the disease. It is most commonly found in poor, rural communities where hygiene levels are poor and access to water and sanitation is limited. Trachoma infections spread rapidly through close personal contact and often run rampant in areas where people live in close proximity. » Read more: Experts Examine How to Eliminate Trachoma at 16th Meeting of WHO-GET2020

IFPMA Creates Blueprint for NTDs R&D

May 16th, 2012

A recent report commissioned by the International Federation of Pharmaceutical Manufacturers & Associations (IFPMA) examines the opportunities and challenges associated with initiatives aimed at stimulating research and development (R&D) of treatments targeting neglected tropical diseases.

According to the report, there are several systemic gaps in the R&D model for NTDs. These include: insufficient dedication to basic research efforts aimed at these diseases; inadequate financial and commercial incentives for further investment in these diseases during applied research and development stages; and the possibility that even if developed, these drugs may still be too costly for populations in developing countries.

The report lays out various mechanisms that can stimulate research and discovery activities in relation to NTDs. Some of these mechanisms are: Open databases or compound libraries, R&D grants aimed at specific research outcomes, R&D prizes that provide payments to R&D entities for achieving a particular outcome, product development partnerships that are comprised of private partnerships involving a combination of grant funding, R&D partnerships focused on product development, and an R&D treaty which is made up of an international agreement to increase funding commitments for R&D into NTDs.  However, many of these mechanisms are in the early development stages and therefore difficult to currently assess their effectiveness. Therefore, the report also provides a model for evaluating mechanisms incentivizing R&D into NTDs.

The full report is available here.

To learn more about NTDs visit here.

Tell Members of the G8 to Prioritize Disease Prevention!

May 15th, 2012

For the past week, the Sabin Vaccine Institute and the Global Network for Neglected Tropical Diseases have been working with a group of organizations to raise awareness of specific issues – such as global health, nutrition, the environment and corruption – in advance of the G8.

Sabin Executive Vice President, Dr. Ciro de Quadros and Dr. Neeraj Mistry, Managing Director of the Global Network for Neglected Tropical Diseases, both contributed articles to the Huffington Post as a part of this effort, urging G8 member countries to prioritize prevention of diseases impacting those living in poverty around the world.

You can read the articles by clicking the links below.

Four Preventable Diseases G8 Leaders Should Keep in Mind by Dr. Ciro de Quadros

Elephantiasis, Snail Fever, Roundworm, More: Eliminating 7 Neglected Diseases that Affect World’s Poorest by 2020 by Dr. Neeraj Mistry

We hope you’ll continue to help us spread the word and work to encourage members of the G8 to focus on preventing diseases of poverty by sharing these articles via email, social media and word of mouth.

Even better, you can now record your own video message to G8 leaders via this link on the Huffington Post.  So get out your webcam and share 10 seconds of your time with our world leaders!