Posts Tagged ‘onchocerciasis’

Why NTDs Annoy Me

April 8th, 2010

by Alanna Shaikh

NTDs annoy me. Seriously, they do. They are screaming evidence of our human attraction to the shiny and dramatic. We don’t get excited about NTDs because they’re not exciting. They are transmitted in complex ways. They’re tricky to explain. They are hard to spell and the toll they take is mostly in suffering, not death. Therefore, we ignore them. Sure, some of the NTDs cost as little as four cents to treat. But why should we do anything? Their names are difficult to pronounce.

I have the solution. Okay, the WHO and USAID want us to work to reduce poverty, build up health systems so poor countries are better prepared to fight NTDs, and use drugs that can treat more than one NTD at a time. But that’s still boring. Who’s going to pay attention to that? Instead, let’s make the NTDs easy to pay attention to. Let’s give them new names.

1)      First of all, we should start with the phrase “Neglected Tropical Diseases” itself. That’s not catchy. I suggest “Diseases that might be in hot countries right now, but with global warming they’ll soon be affecting you right there in Minneapolis.” Long, I know, but evocative.

2)      Soil transmitted helminth infections. Nobody knows what a helminth is, and they can’t ask, because just trying to say helminth is embarrassing. It makes you sound like you’re lisping. I recommend “scary tiny worms that live in dirt and can also live in your guts.”

3)      Lymphatic filariasis. This already has a better name – elephantiasis. But we can take it a step further. How about “Big painful swollen limb disease?”

4)       Onchocerciasis.  “Messes up your skin really badly and can also blind you disease.” Note my use of the second person to make it feel immediate.

5)      Schistosomiasis. “Open sores and swollen organs disease.” I know – those are not the only symptoms of schistosomiasis. But they’re the ones you remember.

6)      Dracunculiasis. It does remind you of Dracula, which is memorable. But how about “Spend a month pulling a long worm out of a hole in your body disease?” Much more frightening than Dracula. (That’s right, dracunculiasis, aka Guinea Worm, is the one where you can only treat it by pulling it out of your body bit by bit for a month. I get queasy just thinking about it. I will go to PayPal right this second and give a donation if it gets that image out of my head.)

7)      Zoonotic helminthiasis. Doesn’t even have a Wikipedia entry; which means its awareness potential is pretty much zero. “Tiny worms that live in animal guts and also in yours” is far more likely to lead to useful disease-fighting support.

8)      Dengue/Dengue hemorrhagic fever. This is actually a pretty good name. Dengue sounds exotic, but it’s not hard to pronounce. And hemorrhagic fever is quite clear. This name can stay.

9)      Rabies. Rabies has pretty good name recognition, but for sheer blood curdling horror, I’d go with “Once you show symptoms it’s too late and you’re doomed even if you know you have it disease.”

10)   Yaws. The name just looks like a typo. Not useful. “Skin-Bone-Joint lesions that do permanent damage but can be stopped with a single dose of penicillin disease” would be a more useful name.

11)   Leishmaniasis. Sounds somehow canine and doesn’t make you think of anything specific. “Giant sores and organ damage disease” would be far more descriptive.

12)    Human African Trypanosomiasis. The old school name, Sleeping Sickness, is a good start, but it doesn’t really convey the seriousness of the disease. I recommend “Sleeping sickness and also it’s fatal if untreated” to really get the point across.

13)    Chagas disease. Just makes us all think of French impressionists. Gorgeous stained glass is not a useful image here. Let’s go with “Blood sucking assassin bug disease.” (Yes, seriously, it’s transmitted by assassin bugs.)

14)   Buruli ulcer. The name sounds almost pretty. “Rotting skin ulcers that can only be removed with surgery” -  not pretty.

I would like us all to start using the new names for the Diseases that might be in hot countries right now, but with global warming they’ll soon be affecting you right there in Minneapolis immediately.  I think we’ll see a rapid increase in both public awareness of these diseases as well as government commitment to fight them.

Alanna Shaikh is an expert in health consulting, writing about global health for UN Dispatch and about international relief and development at Blood & Milk.

NTDs on the Small Screen: Global Health and Hollywood

March 25th, 2010

Mariska Hargitay and Brooke

When most people sit down to relax and watch their favorite television show after a long day’s work they are not thinking about neglected tropical diseases, maternal and child health or HIV/AIDS.  However, that is all changing thanks to new champions in global health like Emmy award-winning actress Mariska Hargitay and Executive Producer Dr. Neal Baer; both from the hit television show Law & Order: Special Victims Unit.

 Through collaboration with Hollywood, Health & Society, a program of the University of Southern California Norman Lear Center in the Annenberg School for Communication and Journalism, popular television shows like Law & Order: Special Victims Unit are raising awareness for these issues by bringing them into the living rooms of people around the world each night. 

 At an event on Capitol Hill last night co-hosted by Hollywood, Health & Society, Chairman Howard Berman and Ranking Member Ileana Ros-Lehtinen of the House Committee on Foreign Affairs, panelists Mariska Hargitay, Dr. Neal Baer, Sally Canfield, Senior Program Officer for The Bill & Melinda Gates Foundation and Sandra de Castro Buffington, Director of Hollywood, Health & Society had an exciting discussion on the impact of the entertainment industry’s portrayal of global health issues and the importance of global health advocacy. 

 Hollywood, Health & Society serves as a bridge between the creative community and the public health field by providing expert health information to the entertainment industry. Through collaboration with Hollywood, Health & Society, over 100 television series including Law & Order: Special Victims Unit, are informing audiences around the world on important global health issues.  Sandra de Castro Buffington highlights television audiences as a global health constituency by noting that more than two-thirds of viewers report learning something from a television show and one-third actually take action.

 Mariska Hargitay added “by raising awareness, we are bringing hope back.” 

 By raising awareness about pressing global health issues and shedding light on the plight of the more than one billion people who suffer from neglected tropical diseases, Hollywood really does have the ability to bring hope back.

 So next time you are watching tv, don’t be surprised if you learn a little bit about schistosomiasis or onchocerciasis at the same time!

Reading List 3/24/2010

March 24th, 2010

Today is World Tuberculosis Day so, in addition to today’s guest post, we’re giving you a dose of news on the fight against TB. We also have an update on the fight against onchocerciasis in Nigeria and a promising new technology for water filtration.

‘Tangible Progress’ Reported in Control of TB in SE Asia, Steve Herman, Voice of America

Momentum in fight against tuberculosis must be maintained, Ban says, UN News Centre

New drug hope in fight against TB, BBC News

Nigeria: 19 Million Nigerians Treated for River Blindness in 12 Years, Peter Duru, AllAfrica.com

Nanoparticle Science Helps Create Low-Cost Water Purification Systems, Brit Leggitt, Inhabitat

http://www.inhabitat.com/2010/03/23/nanoparticle-science-helps-create-low-cost-water-purification-systems/

Reading List 3/8/2010

March 8th, 2010

Today, as we join in celebrating International Women’s Day, we’re reading the WHO’s comments on this day as well as reviewing a paper Dr. Peter Hotez wrote about womens health and NTDs. We’re also reading a profile of river blindness and about Buruli ulcer, one of the less discussed NTDs.

Equal rights, equal opportunities: progress for all, World Health Organization

WHO laments “shameful” lack of respect for women’s right to good health, World Health Organization

Empowering Women and Improving Female Reproductive Health through Control of Neglected Tropical Diseases, Peter Hotez, PLoS Neglected Tropical Diseases

Blind to the river and its hazards, Stanley M. Aronson, The Providence Journal

Buruli ulcer: an overlooked tropical disease, Robert Herriman, Examiner.com

River Blindness Transmission Cycle Broken in Ecuador

March 4th, 2010

Just this week the Ministry of Health and several other partners in the Onchocerciasis Elimination Program for the Americas (OEPA) have declared onchocerciasis transmission has been halted in Ecuador. As per World Health Organization policy, Ecuador must now monitor and verify elimination for the next three years. In 2008, the Pan American Health Organization restated its dedication to eliminating river blindness in the Americas by 2012 and this announcement is an important step towards achieving that goal.

Onchocerciasis is transmitted by the bite of the black fly and a small, bite-transmitted worm parasite. This parasite, Onchocerca volvulus, causes skin irritation and can cause loss of sight. The illness is known as river blindness because the black flies breed in fast-moving bodies of water near affected communities. In order to break the disease transmission cycle, implementing organizations utilize the common practice of mass drug administration (MDA). In MDA programs, safe and affordable (often donated) drugs are distributed to entire communities several times a year. For onchocerciasis treatments, the Merck produced drug Mecitzan (ivermectan) is used at no cost. In the last twenty years over eight million doses have been distributed across the region in endemic communities.

OEPA is a regional collaboration that was started in 1993 by The Carter Center to treat the more than 500,000 people at risk for this disease across Latin America. The partnership includes the Pan American Health Organization (World Health Organization), the pharmaceutical company Merck, the Pan American Health and Education Foundation (PAHEF), Lions Clubs International Foundation, and the Bill and Melinda Gates Foundation. The OEPA program targets the six Latin American countries (Brazil, Ecuador, Guatemala, Mexico and Venezuela) where onchocerciasis is still a public health threat. Originally there were seven countries on this list, but Colombia achieved transmission interruption in 2008. In light of this week’s announcement, this list will be shortened to only five countries.

With a growing interest in the potential for elimination of onchocerciasis from Africa, the success of the programs in the Americas provides an experience base that can guide the next phase of the onchocerciasis program in Africa.

See Also: 

http://www.pahef.org/press/2010_river_blindness.html

http://www.aolnews.com/health/article/ecuador-halts-spread-of-river-blindness/19378514

http://www.cartercenter.org/news/pr/ecuador-030110.html

Good Read: Ending the Neglect of Neglected Tropical Diseases

February 19th, 2010

Here is some worthwhile weekend reading! Perfect for lounging out and sipping a cup of tea at a local coffee shop!

 The Population Research Bureau (PRB) put out a policy brief called “Ending the Neglect of Neglected Tropical Diseases.” The paper gives a good introduction and breakdown of NTDs, its global impact and the cost-effective and efficient solutions available now to help tackle them.

Check it out here

Neglected Tropical Diseases and the Quest for Social Justice

February 19th, 2010

Tomorrow, February 20th, 2010, marks the second annual World Day of Social Justice. This event was created in 2007 to “consolidate further the efforts of the international community in poverty eradication and in promoting full employment and decent work, gender equality and access to social well-being and justice for all.” There are many ways to work towards those goals, but one of the most effective, and cost effective, is the elimination of neglected tropical diseases (NTDs).

 To eradicate poverty and promote full employment, NTD treatment is vital in the developing world. If a person is suffering from lymphatic filariasis and has severely swollen limbs to the point of being unable to work, or have contracted trachoma or onchocerciasis and gone blind, it hinders their ability to earn a living. Infections from the soil-transmitted helminth family of parasites cause anemia and nutrient deficiencies in children, stunting their physical and mental development. One of these parasites, roundworm, can decrease the future earnings potential of an infected child by 43%. However, deworming not only prevents the developmental disabilities created by infection, but also has been found to decrease school absenteeism by 25%. If future generations are to break free of the vicious cycle of poverty and unemployment, then NTD treatment must be included in any efforts.

Photo courtesy of Lindsay Wheeler

Photo courtesy of Lindsay Wheeler

 NTDs also play heavily into issues of gender equality, as they tend to disproportionately affect women. In areas of great gender inequality, the social stigmas attached to the disfigurement, morbidity, and disability caused by NTDs tend to be especially isolating and ostracizing for women. Women who have suffered from disfiguring NTDs such as lymphatic filariasis or onchoerciasis have lost their jobs, lost their families, and even been prevented from seeking medical attention. Further, NTDs pose special risks to women sexually and reproductively.  NTD infections cause women in particular to be especially at risk for sexually transmitted diseases. Genital sores on women caused by schistosomiasis have been shown to increase the risk of HIV infection threefold. Both schistosomiasis and roundworm have been linked to maternal anemia during pregnancy, leading to complications, as well as low birth weight and sterility. For gender equality to be reached, these diseases which disproportionately affect women must be dealt with.

 Those two points together make a strong case for NTD treatment, but there’s even more to be said in terms of social well-being and justice. Nations which are unstable or volatile, such as Pakistan, Niger, or Sudan, tend to have a high NTD disease burden. That is no coincidence. NTDs breed the poverty and inequality that give rise to political instability and violence. NTD treatment would not only heal the sick and help the poor, but it would help to stabilize nations and entire regions.

 So tomorrow, as you enjoy your Saturday, remember those less fortunate than you. Remember those for whom survival is a daily struggle, poverty an unavoidable fact of life, and political instability and violence an ever present threat. Then consider that treatment for the seven most common NTDs can be provided for only 50 cents a year per person. Consider all the good that can be done for such a small price.

 The UN created World Day of Social Justice with an eye towards a better future. For that to be accomplished, NTD treatment must be part of the plan.

Reading List for 2/17/10

February 17th, 2010

Today we’re reading about some exciting developments in dealing with insect-borne diseases, updates on the prevalence of blinding diseases in Africa, and the start of the UN’s annual conference with NGO’s focusing on global health.

Posing Proteins: First Chikungunya Vaccine Tested on Monkeys Successfully, Down to Earth

Mosquito Nose Transplants Help Fight Malaria, Catharine Paddock, Medical News Today

Bednets to Stop Leishmaniasis Spread, Smriti Mallapaty, SciDevNet

Blinding Infectious Disease is More Common in Malawi Than Anticipated, Paul Chinnock, TropIKA

Ghana: Krachiwura’s SOS Message to Govt, Samuel Agbewode, AllAfrica.com

UN’s Annual Conference with Civil Society Groups to Spotlight Global Health Issues, UN News Centre

Reading List 2/16/10

February 16th, 2010

Today we’ve got some exciting news about possible cures for NTDs, Obama’s new envoy focusing on global health, and a bit of science looking at a past success. Here’s what we’re reading today:

UCSF may have cure for deadly disease Chagas, Carol Lloyd, San Francisco Chronicle

How an Old Drug Could Have a New Use for Treating River Blindness, Science Daily

In Naming Islamic Conference Envoy, Obama Highlights Global Health, Food Security Efforts, Kaiser Family Foundation

Successful Control of Lymphatic Filariasis in the Republic of Korea, multiple authors, The Korean Society for Parasitology

Reading List 2/12/10

February 12th, 2010
DC Streets Covered in a Blanket of Snow
DC Streets Covered in a Blanket of Snow

As we dig ourselves out and are settling back into the office after unprecedented amount of snow hit Washington DC this past week, here is what we’ve been reading.

  1. Former U.S. President Jimmy Carter Visits Last Stronghold of Guinea Worm Disease in Southern Sudan, Emily Staub, ModernGhana.com
  2. Drug shows promise against river blindness, Yahoo! News
  3. What Haiti needs most, Richard Santos, Baltimore Sun
  4. Hong Kong Says Skip Worm Diet, Scott Hensley, NPR Blog
  5. Uganda: Swelling Feet Bring Pain, Fear to Ibanda Village, Jennina Aryampwera, allAfrica.com
  6. Halving world poverty by 2015 unlikely: UN, AFP
  7. Aid groups fear Haitian relief diverts funds from other needs, Mary Beth Sheridan, Washington Post