All posts by Amy Alabaster

About Amy Alabaster

Amy is a communications intern for the Global Network and the Sabin Vaccine Institute. Before joining Sabin, Amy worked as a writer for the NIH Research Matters publication and as an NIH Fellow for the Laboratory of Malaria and Vector Research. She has an M.S. degree in biochemistry from the University of Arizona.

Success story in Togo marks important milestone in global NTD elimination effort

Saffiatu James, doesn't know her age

Earlier this month, the journal PLoS Neglected Tropical Diseases published some very exciting news – Togo is about to become the first sub-Saharan African country to eliminate lymphatic filariasis (LF), a painful and disabling neglected tropical disease (NTD) also known as elephantiasis.

At the Global Network our goal is to help end the seven most common neglected tropical diseases, along with all the pain and stigma, all the negative repercussions on health AND development. The success in Togo shows that we can reach elimination targets using the affordable and effective tools we already have at our disposal. Regions in Guatemala and Mexico have also successfully interrupted transmission of onchocerciasis, another one of the most common NTDs, adding further proof that we can see the end of NTDs in our lifetime.

In the Dr. Peter Hotez, President of the Sabin Vaccine Institute and Editor of PLoS NTDs, writes:

“The importance of the paper stems from the fact that it provides further proof of principle that sub-Saharan African nations are building on their previous successes in elimination or eradication of selected neglected tropical diseases (NTDs) including dracunculiasis (guinea worm) in most of the region, onchocerciasis (river blindness) in two countries, and human African trypanosomiasis (sleeping sickness) in more than a dozen countries.”

Dr. Hotez goes on to explain how he believes the “stars should align” to achieve global elimination of NTDs.

“I am very excited about the results coming out of Togo, which give me cause for great optimism and hope” he concludes.

Togo moves towards LF elimination

An estimated 120 million people worldwide are affected by lymphatic filariasis (LF), a parasitic disease spread by the bite of infected mosquitoes. Without treatment, LF can cause extreme swelling of the extremities causing great pain and disfigurement.

Togo is one of the 34 African countries endemic for lymphatic filariasis and is surrounded by the endemic countries of Benin, Ghana, and Burkina Faso. Following WHO suggestions, Togo founded the National Program to Eliminate Lymphatic Filariasis (NPELF) in 2000, with dual goals to 1) prevent LF transmission through mass drug administration (MDA) and 2) manage symptoms of those already affected.

As reported, Togo is on its way to confirmed interruption of LF transmission, meaning that they’ve successfully stopped the spread of the disease from person to person so that no new cases occur. After a 5-year surveillance phase, which started in 2010, the country can make the successful completion of this target official.

See the paper to learn more

Friday Reading List

“In the Rough”, a New Film by END7

 

It might be hard to imagine what it’s like to suffer from a disease like schistosomiasis. The name itself is hard to pronounce, and most people don’t know of anyone who has ever had it…

…Unless they’re from, or have lived in one of the nearly 80 countries where schistosomiasis (schisto, for short) is a major problem. More than 200 million people are currently infected by the parasite that causes schistosomiasis, and 280,000 people die from the disease each year, making it the leading parasitic killer after malaria. Schisto is just one of seven neglected tropical diseases (NTDs) that infect more than 1 billion people around the world.

But those are just numbers. What is it really like to live with schistosomiasis, to live in constant threat of infection and re-infection? And what is it like to have that burden lifted with a simple and affordable intervention?

“In the Rough,” a new short film by the END7 Campaign helps to answer those questions. Produced by filmmaker Mo Scarpelli, the film explores what life is like in Kono District, Sierra Leone, an area that supplied most of the country’s “conflict diamonds” during its bloody civil war, and which has some of Sierra Leone’s highest rates of schisto. It follows Sahr Gando, an independent diamond miner and farmer living in Kono District, who, like many of his fellow miners and community members, suffered from severe schisto. Before receiving treatment, Sahr Gando was unable to do his normal work or take care of his family.

Screen Shot 2013-04-11 at 3.08.23 PMScreen Shot 2013-04-11 at 2.56.51 PMSchisto doesn’t only affect people living in poverty, it perpetuates poverty by preventing people from working, going to school and supporting their families and communities.

Luckily there is a solution. Another dynamic individual featured in the film is Susan Mathews, a community health worker in the village of Boroma. Along with other health workers in Kono District, Susan is helping to educate and treat people living in her village as part of a larger effort to stop transmission of schistosomiasis for good.

“In the Rough” showcases the powerful story of a community that is fighting a little-known, but devastating disease. While you need to watch the film to get the full story, here’s a spoiler: this community and others like it in Sierra Leone, working with partners like Helen Keller International, USAID, the Sierra Leone Ministry of Health and END7, is making remarkable progress in the fight against schisto and other NTDs.  Sierra Leone is on that path to eliminating major NTDs in the next few years and setting an amazing example for other countries to follow.  Another spoiler:  the ending will be one of the happiest parts of your day.

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Friday Reading List

coffee keyboard

Enjoy this week’s reading list with your morning (or afternoon) coffee!

Neglected Tropical Diseases: How You Can Help – ABC News

The Disease Next Door– Foreign Policy

EXCLUSIVE: Telephone interview with President J.A. Kufuor, Special Envoy to the Global Network for NTDs – Africa News Analysis

Where Are the Scientist-Advocates and Civic-Scientists? – Huffington Post

Tropical Diseases Infect 1 in 6 People Worldwide – ABC News

Nigeria Launches Plan to Control Neglected Tropical Diseases – RTI International

Tokyo Institute of Technology and Astellas Use Supercomputer to Fight Tropical Diseases – HPCwire

Health: WHO nudges countries on neglected tropical diseases – Panapress