All posts by Mara Veraar

NTDs: A Cross-Cutting Issue

 

Collaboration was a major theme at the recent Uniting to Combat Neglected Tropical Diseases: Translating the London Declaration into Action conference held in Washington D.C. While the focus was primarily on the seven most common NTDs, numerous cross-cutting issues were identified. Participants stressed emphasis on the potential for synergy and mutual inspiration among disease advocates.

A side meeting showcased both Leprosy specialists and NTD advocates. Presenters urged the audience to explore common elements and approaches in research and advocacy for both disease groups.

Besides disease prevention, it was noted that the following areas also offer potential for collaborative efforts in dealing with Leprosy and Neglected Tropical Diseases:

  • community awareness
  • detection
  • treatment
  • training
  • supervision
  • patient education and self-care
  • monitoring
  • information systems
  • community participation
  • rehabilitation
  • stigma related issues
  • research
  • surveillance

Mr René Stäheli of ILEP said: “We can really contribute with our expertise in morbidity and disability management, and in stigma, to name just two areas. But we can also profit from the experience that other disease communities bring in.”

Read more.

Become a Back-to-School Activist in 5 minutes

So you want to be an END7 activist? It’s easy! Your school is a great place to start your own END7 campaign. Who doesn’t have spare change to donate?

Neglected tropical diseases are neglected because not many people have heard of them. The first step to getting people excited about your project is to do a little educating.

Some ideas:

  • Show our during an assembly or before a class (health, social studies and science are all good classes to try!)
  • Use , , stickers, or banners to get people talking about NTDs. Here’s an example of a you can print out. Or do something .
  • Use social media to share information about NTDs. Here’s a handy tweet bank for you to use. You can set up your own Twitter account for your campaign or create a Facebook event to invite people to.

 

Once people know a little more about what NTDs are and how just 50 cents helps treat & protect a child for a whole year, you’re ready to start your fundraiser.

Some ideas that you can do at school:

For many of these events you can charge a small entry fee, ask for sponsors, or just provide people with the opportunity to give money by setting up donation jars or laptops where people can donate online. You can also send the link around via email with a note encouraging your friends to get involved.

 

If you hosted a fundraiser, you can send your donation to us the following ways:

  1. Use our online donation page.
  2. Send us a check.
Address:
Global Network for Neglected Tropical Diseases
2000 Pennsylvania Avenue
Suite 7100
Washington, DC 20006

Most Important: Report back to us on the progress of your work! Share information or photos with us and we’ll be sure to share it with the rest of our community of supporters.  You can get in touch with us directly via , , or by emailing us at

Tweet Chat Series: All Things Twitter

Thanks to all who participated in last month’s Tweet Chat. This month we’re focusing on all things Twitter! We have a guest expert who will answer questions on branding, the best tools for defining and reaching your audience and easy reporting. We’ll also discuss crisis communications and what that means for Twitter.

Jaymie Gustafson, Director at Spitfire Strategies,  is a DC-based communications consultant.  She works with organizations of all sizes to help them home their messages, streamline their outreach and make smart, strategic social media decisions that support their mission. In a past life she worked on the consumer brand side of the PR world, and now takes the social media lessons she learned from the big brands and applies them to her non-profit and foundation clients.

The logistics:

The twitter event will be held 7/16 at 2:00 EST and use hashtag #GHchat.

Follow us at

Feel free to submit questions before the chat or join us for the live hour. An archive of the chat will be created on Storify. If you are interested in participating or looking for more ideas on how you can incorporate social media into your global health promotion, be sure to check out the event on Twitter.

Lions Clubs tackle problems – big and small, local and global

Lions tackle problems – big and small, local and global – through humanitarian service. Our Lions Clubs International Foundation is working to eliminate trachoma and river blindness, two of the seven neglected tropical diseases targeted by the organization . Lions and LCIF eliminated river blindness in Colombia and are working to eliminate trachoma in China by 2016.

Read more.