Posts Tagged LF

Alyssa Milano, Tonic.com, and the Global Network Unite Against Lymphatic Filariasis!

April 19th, 2011

Photo courtesy of IMA World Health.

LF, also known as elephantiasis, affects 120 million people worldwide and this week (April 19-26), we are proud to partner with actress and Global Network Ambassador Alyssa Milano and Tonic.com an online platform to educate and engage consumers around positive actions on a social-media driven campaign to raise $75,000 to keep a lymphatic filariasis (LF) program alive in the Indian state of Orissa.

IMA World Health and the U.S. Centers for Disease Control and Prevention (CDC) have partnered with the

google images

Indian n.g.o CASA on a lymphatic filariasis program in Orissa to care for 23,000 LF patients and work to identify new cases of the disease. The program serves to provide emotional support, home care, and health education to LF patients and their families. These health and education programs allow LF patients to get back on their feet and be empowered to return to work and be productive citizens, contributing to their families and communities.

This program needs $75,000 to continue. The Global Network, Alyssa Milano, and Tonic.com are determined to End the Neglect and raise those funds now. Together we make a BIG difference.

Will you join our cause? This is how you can help us meet our goal of $75,000:

Contact us at globalnetwork@sabin.org with any questions or comments.

Join us to End the Neglect!

Click HERE to donate now.

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New NTD treatment program launches with some help from Miss Brazil

March 28th, 2011

By: Jessica Stuart

Last week, I filmed the launch of an NTD treatment program in Recife, Brazil with the Global Network. Recife is Brazil’s fourth largest city with 1.5 million people, but one million of those people live in poverty.  Brazil has made incredible progress fighting neglected tropical diseases in many areas, but the poorest of the poor are still at risk for NTDs like Lymphatic Filariasis (LF), leprosy and intestinal worms.  As the country grows into a world superpower, cities like Recife are working with partners like the Global Network, PAHO, and Miss Universe to help eliminate the unnecessary pain and suffering caused by NTDs.

Current Miss Brazil Debora Lyra and former Miss Brazil and BAND TV presenter Renata Fan joined the fight last week with a very special visit to the Jose Cordeiro School in Cohab, Recife.

The children were curious about our visit, and when we told them that Miss Brazil was coming, they were excited. They had so many questions. Why is this happening at their school? Why are they special? Why now?

The school is part of an important outreach effort taking place. Teachers are working to educate the children about NTDs. Most of all, they are there to let the children know that these diseases are PREVENTABLE.   And elimination is possible, especially when you start with a child.  If you can teach a child, a child can bring the knowledge home to a family.

Read more: New NTD treatment program launches with some help from Miss Brazil

Letter to a Parasite

March 1st, 2011

By: Amanda Miller

Dear Lymphatic Filariasis,

You disgust me.  You are a parasite.  You use unsuspecting mosquitoes to spread thread-like worms into unsuspecting humans.  You occupy the lymphatic system in humans, and in severe cases, you lead to elephantiasis.  In case you didn’t know, that’s massive and painful swelling of limbs.  You cause pain, immobility, and problems for human beings that happen to be mothers, brothers, bread-winners, fathers, teachers, workers, sisters, cousins, friends.  You’ve never bothered to ask for permission or wondered how your parasitic existence would affect their lives.  To be honest, I’m pretty angry about this.

In fact, we use your name -parasite- to mean something so self-serving that would attach itself to someone else and live off of their life.  Yes, we may have referred to past partners, boyfriends and girlfriends as parasites (evidently, relationships that don’t work out).  We use your name for unsolicited malicious computer programs that destroy our hard drives.  We use your name to talk about things that disgust us.  Yes, we humans love a good analogy.

Read more: Letter to a Parasite

Ending the neglect

January 28th, 2011

UK-based journalist Emilie Filou (who recently authored this great article on Trachoma), writes about neglected tropical diseases again for This is Africa. The article also features snippets from interviews Filou conducted with Dr. Neeraj Mistry, Managing Director of the Global Network, and Dr. Peter Hotez. The piece discusses the role of pharmaceuticals in NTD control, the importance of integration across other disease and issue areas and elimination goals.

From the article:

“The term ‘other disease’ has been a great frustration,” says Dr Peter Hotez, president of the Sabin Vaccine Institute and an expert on NTDs. “It’s quite clear that you won’t get Bono or Angelina Jolie to help out with ‘other diseases’. That’s what spurred us to call them Neglected Tropical Diseases as a group. It’s not the greatest of names, but it will help galvanise awareness,” he says.

Advocacy group The Global Network for NTDs is now lobbying to include NTDs under the remit of The Global Fund, Pepfar or the President’s Malaria Initiative. “We have new data coming out of Zimbabwe that shows that women infected with schistosomiasis are three times more likely to be infected with HIV,” explains Dr Neeraj Mistry, managing director of the Global Network.

“Treating schistosomiasis therefore becomes an intervention for HIV control; it’s those links we need to make to justify the inclusion of NTDs in global health efforts.”

There are many more such synergies: HIV-positive individuals have seen a decrease in their viral load when de-wormed; lymphatic filariasis is transmitted by mosquitoes, so the use of bednets, widely distributed for malaria control, is an efficient prevention measure.

Dr Mistry says that including NTDs in the Global Fund would only increase their budget marginally, but substantially increase their impact. “It costs as little $0.5 per year to treat an individual against NTDs. Compare that with the $100 it costs to treat someone with HIV, or the $35 the average African family spends on malaria control. In terms of investment, you won’t find a better return in health.”

To read the full article click here

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    • The Global Network for Neglected Tropical Diseases is a major advocacy and resource mobilization initiative of the Sabin Vaccine Institute dedicated to raising the awareness, political will, and funding necessary to control and eliminate the most common neglected tropical diseases (NTDs)--a group of disabling, disfiguring, and deadly diseases affecting more than 1.4 billion people worldwide living on less than $1.25 a day.
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