This spring, we awarded nearly $400,000 in new grants for neglected tropical disease (NTD) control and elimination activities in 2016.
This funding is made possible by generous donations to Sabin Foundation Europe, a partner of the U.S.-based Sabin Vaccine Institute and the Global Network also helped make these grants possible.
The grants will make a significant impact in supporting integrated NTD programs in six countries. All projects are coordinated with Ministries of Health and/or the World Health Organization in each country. Many of the projects include mass drug administration (MDA) for the most common NTDs and training of health care workers. These projects are expected to benefit nearly six million individuals at risk from NTDs and train tens of thousands of health workers and volunteers to lead the NTD control and elimination effort into the future.
Awarded to existing efforts that faced a funding gap, these projects will have a lasting impact on improving and expanding existing programs to reach ambitious NTD control and elimination goals in Africa, Asia and Latin America – the regions with the largest NTD burden:
Nigeria $50,000 to support integrated MDA for seven NTDs, administered by Sightsavers with the support of the Federal and Kebbi State Ministries of Health. Nearly 5.9 million people will receive donated medicine in Kebbi state, in northwest Nigeria, where all seven NTDs are widespread. Sightsavers will continue their successful MDA in the region and expand to new areas.
Somalia $66,200 to support the first integrated MDA in five regions of southwestern Somalia by the new NTD Program of the Ministry of Health and Human Services. The MDA will target schistosomiasis (snail fever), ascariasis (roundworm), hookworm and trichuriasis (whipworm) among school-age children and adults in areas of high prevalence. The NTD Programme was established in 2015; success this year will help scale up the delivery of donated medicine to the rest of the country.
Cote d’Ivoire $28,789 to support water, sanitation and hygiene education to prevent NTDs in Cote d’Ivoire, administered by Helen Keller International. More than 7,000 health workers, school teachers and community health volunteers will be trained to reach more than 2.5 million people.
Guyana $111,146 to support MDA to eliminate lymphatic filariasis in the most populous region of the country, administered by the Pan American Health Organization and the Ministry of Public Health. Guyana is on track to eliminate lymphatic filariasis (also known as elephantiasis) by 2020. These funds were raised for END7 by the Sabin City Group in London.
India $60,546 to assist a local NGO, Churches Auxiliary for Social Action (CASA), to expand their successful efforts to treat and prevent lymphatic filariasis to West Bengal. This grant will enable CASA to train community members to manage the swelling and disability that often results from later stages of lymphatic filariasis. Each infected patient will receive a hygiene kit with soap, a towel and antifungal ointment and be shown how to care for themselves to reduce swelling. CASA will also promote the government’s annual MDA targeting 500,000 people for lymphatic filariasis treatment in West Bengal.
Myanmar $75,645 to assist the Department of Public Health to determine where MDA for lymphatic filariasis has succeeded and can be concluded. Nine districts with a population of nearly 7 million have already conducted more than five rounds of MDA for lymphatic filariasis. Officials will determine whether transmission has been interrupted.
The Global Network team reviewed 37 proposals from a range of partners tackling NTDs around the world and selected projects with the potential to have the most lasting impact, leverage further investment and bolster country-led efforts to eliminate NTDs.
To date the Global Network has awarded more than US$1 million in grants to 19 partners. From individual donors contributing $5 a month to student groups raising $10,000 over the course of a school year, the END7 campaign has mobilized a diverse and growing community of supporters from countries around the world dedicated to supporting the fight against NTDs. Together, these contributions are moving the NTD elimination effort forward by helping communities set up treatment programs they can run themselves. END7 supporters fill funding gaps in successful NTD treatment programs, highlighting the tremendous impact of this inexpensive treatment and the power of partnership in the fight against NTDs.
END7 student supporters have had a busy spring! Between creative fundraising events, high-impact advocacy activities (including meetings with 39 members of Congress on the second annual END7 Student Advocacy Day!), and the launch of chapters at universities from Scotland to Ghana, our student community has been making a difference in communities around the world. Students kicked off this busy semester with the celebration of the first-ever global NTD Awareness Week from January 24-30 – ending on the fourth anniversary of the signing of the London Declaration on NTDs.
Here are some highlights from the week from participating universities around the world:
Duke University (Durham, North Carolina, USA)
Duke University END7 Student Advisory Board representative John Lu is currently teaching a for-credit elective course on NTDs, and celebrated NTD Awareness Week on campus by inviting Justin Lana, a PhD candidate at Duke, to give a guest presentation on guinea worm to the class. Justin spent two years living in a tent in South Sudan working with the Carter Center on their Guinea worm eradication effort. He shared stories of his work while living there, and demonstrated to the class how exactly he, and those he supervised, went about from community to community to ensure that guinea worm transmission was interrupted. He even brought in a few of the actual water filters that were distributed to community members to stop transmission, and passed around a guinea worm in formaldehyde that he had smuggled into the U.S. The sample is one of just 300 remaining samples of guinea worm, which is nearing eradication (with just 22 human cases left in the world).
Georgetown University (Washington, D.C., USA)
Throughout NTD Awareness Week, Georgetown students actively promoted a petition to urge President Obama to increase funding for the USAID NTD Program in the last budget request of his presidency. END7 at Georgetown members helped deliver petition signatures across town to the White House at the end of Awareness Week!
Glasgow University (Glasgow, Scotland)
To celebrate NTD Awareness Week, the newly-established GUEND7 Society organized a pub quiz trivia event that raised £177.05 ($250) for END7! 30 attendees had a great time answering trivia questions about NTDs and other topics. The winning team was awarded a prize of tea cakes and biscuits donated by a local merchant.
Northeastern University (Boston, Massachusetts, USA)
END7 at Northeastern celebrated NTD Awareness Week with a Dancing with the Stars fundraising event, bringing campus celebrities together with members of the Northeastern University Ballroom Dance Team to put on fun performances – and even offer a Bachata dance lesson to attendees!
This creative event raised hundreds of dollars for NTD treatment – and was a whole lot of fun!
Nnamdi Azikiwe University (Awka, Nigeria)
Students at Nnamdi Azikiwe University, Awka, organized a training session for medical students to learn more about NTDs. The president of the Nnamdi Azikiwe University, Awka Medical Student Association (NAUMSA), John Chukwu, recorded this video explaining NTDs and the END7 campaign and rallying students to get involved in the NTD effort.
Rice University (Houston, Texas, USA)
END7 at Rice launched NTD Awareness Week with a Super Smash Bros video game tournament that brought students from across campus together to raise money to “smash NTDs” while competing to win their favorite game.
After a busy week of advocacy and education activities on campus, they collaborated with the Rice Pre-Medical Society to make NTDs the topic of their Third Annual Medical Speakers Conference on January 30. Dr. Peter Hotez, president of the Sabin Vaccine Institute (home of END7), delivered the keynote address, “NTDs: The Global Diseases of War and Poverty” – and took a minute to pose with members of the END7 at Rice executive board at the event.
Saint Mary’s University (Halifax, Canada)
Members of the just-launched SMU Voice for NTDs student society celebrated NTD Awareness Week with a fun Tropical Night fundraiser to spread the word about their new club and raise money for NTD treatment. The event featured a limbo competition, tropical photo booth, costume contest, and tropical refreshments – a perfect escape from the Halifax winter weather!
Talk about putting the fun in fundraising!
University of Sierra Leone (Freetown, Sierra Leone)
The leaders of END7 at the University of Sierra Leone College of Medicine and Allied Health Sciences (COMAHS) organized several exciting events during NTD Awareness Week, beginning with a capacity building training for students to learn about the NTDs prevalent in Sierra Leone. The training was co-facilitated by Hellen Keller International, an NGO addressing NTDs in the country. END7 at USL president Ishmael Tamba Jalloh gave a presentation about END7 and NTD Awareness Week at the event.
Ishmael then appeared on the Sierra Leone Broadcasting Cooperation national television program, PODIUM, to raise awareness about NTDs and END7, and was interviewed on two radio stations to promote NTD Awareness Week. Listen to his interview on the “Good Morning Show” here.
In addition to educating students and citizens about NTDs, END7 at USL members got involved directly in the NTD control and elimination effort by visiting schools in a low-income area of Freetown to educate primary school students about the importance of washing their hands and participating in mass drug administration (MDA) campaigns to stay safe from NTDs.
They also brought a water purification device to the school they visited to drive home their message!
END7 at USL members celebrate a successful NTD Awareness Week by holding up 7 fingers for END7!
University of Texas at Austin (Austin, Texas, USA)
END7 at UT kicked off NTD Awareness Week by setting up a Bagels and Brochures table in a busy area of campus, handing out information about NTDs and pastries donated by a local Panera restaurant.
Club members also wrote dozens of letters to President Obama urging him to increase funding for the USAID NTD Program in the last budget request of his presidency – mailing them to D.C. just in time for our petition delivery at the White House!
We are so proud of END7 student supporters around the world who came together to raise awareness and funds to fight NTDs during the first-ever global NTD Awareness Week. The diversity of our student supporters and the events they organized is a testament to the global nature of the NTD control and elimination effort – and the power of partnership in fighting NTDs. Here’s to making NTD Awareness Week bigger and better in 2017!
The END7 campaign awarded scholarships to three outstanding student leaders to attend the second annual END7 Student Advocacy Day in Washington, D.C. Read scholarship winner Cyrus Ghaznavi’s reflection on his experience in D.C.:
By Cyrus Ghaznavi, Rice University
Nearly a year after the first ever END7 Advocacy Day in April of 2015, I was back on a plane headed nonstop to Reagan National Airport. The second annual Advocacy Day was less than 24 hours away!
Over the past year, Rice University’s chapter of END7 has grown significantly. Our general membership and committees have expanded and awareness of our cause on campus has blossomed. We have hosted trivia nights, fundraisers, Super Smash Bros video game tournaments, petition drives, and much more. Consequently, what once started as a relatively obscure club on campus has now gained significant traction within the Rice community.
However, though we have worked extensively to advocate for NTDs “inside the hedges,” the Rice chapter of END7 strongly believes that official policy change is needed to successfully control and eliminate the seven most common NTDs. In fact, our mission states that “END7 at Rice is an organization that strives to raise awareness…for our mission with local and national policymakers.” And so, when I was faced with the question of whether or not to attend the second annual END7 Advocacy Day, it was a no-brainer.
The momentous day was kicked off by Senator Roger Wicker, co-chair of the Senate Caucus on Malaria and NTDs, who had invited the END7 group to morning coffee. After socializing and meeting our morning coffee quota, we took pictures with the Senator, who explained that NTDs are an issue very near and dear to his heart. After coffee, we were welcomed by Dr. Neeraj Mistry, Managing Director of the Global Network for Neglected Tropical Diseases. We were then presented with informative presentations by representatives from the U.S. Agency for International Development, RTI International, and Helen Keller International, before grabbing lunch in our small groups.
Last year, I had the pleasure of working with Kathryn McGrath, who works with END7 as a member of the Global Network staff, as the leader of my small group. Perhaps not coincidentally, she was my group’s leader again, so we immediately had a dynamic and strategy for how to pitch our case to the four House Representatives we would be meeting that day. Working with my teammates Antonia, also from Rice University, and Elaine, from the University of Texas at Dallas, we devised a division of labor as to which points we would each hit in our meetings with staff.
Kathryn started each meeting with a brief introduction to END7, after which Elaine jumped in by sharing some of USAID’s most persuasive statistics. One of every six people globally suffers from one of the seven most common NTDs. For every $1 invested into the program, $26 worth of donated pharmaceuticals are leveraged. For a mere $0.50, an at-risk individual can be treated and protected from the seven most common NTDs for a year. So far, 1.4 billion treatments have been distributed to almost 700 million individuals. Antonia would then shift gears and relay some of the more human, emotional aspects of the program and NTDs. She mentioned that children miss school and parents miss work when infected, reinforcing the cycle of poverty. She went over some of the disfiguring and debilitating symptoms of these seven diseases, and wrapped up by talking about the stigma associated with them. At this point, I pounced by synthesizing what those before me had mentioned. I asked if the Representative would support increasing USAID NTD funding by 25 percent instead of allowing it to be cut by 13.5 percent. Additionally, I implored the staffers to encourage their Representatives to join the Congressional Caucus on Malaria and NTDs, if they were not members already. “This is not the time to lose momentum – USAID funding is critical during this watershed time,” we would conclude.
We had four successful meetings with Representative staffers, and even got to meet one of the Representatives in person: Rep. Ami Bera (D-CA), with whom we briefly chatted and took some pictures! He was a very unique case, given that he has an M.D. and can thus see NTDs from both a medical and political standpoint. As a pre-medical student studying both biology and policy, I felt that my interaction with Rep. Bera was particularly meaningful – especially since my group also visited his office during the 2015 END7 Student Advocacy Day!
At the end of the day, we all attended a reception where Barbara Bush, CEO and co-founder of Global Health Corps, and Peter Hotez, president of the Sabin Vaccine Institute, spoke to the END7 advocates. Ms. Bush’s speech was truly moving and inspiring, urging us to global health action. Dr. Hotez recounted the beginnings of END7 and the USAID campaign, putting all of our advocacy into a unique, historical context.
And before I knew it, the day was over. As a group of nearly 50 students and leaders, we had spoken to almost 40 congressmen/women or their staff. Our pitches were not partisan, nor were they communicated out of self-interest: we were all passionate voices in the realm of NTDs, and we were all thrilled to be in the Capital.
Speaking for Rice, I cannot express how proud I am of the growth and commitment I have seen in just one year’s time. Last year, three students, including myself, attended this trip. This year, we had almost 20, comprising the large plurality of the advocates who attended (even compared to the schools in Washington)! I can only imagine how much more growth we will see in the coming years. Here’s to counting down to next year’s advocacy day!
Cyrus Ghaznavi is a junior at Rice University studying Biological Sciences & Policy Studies. He represents Rice on the END7 Campus Leaders Council and participated in the END7 Student Advocacy Day in 2015 and 2016.
In September, the Global Network for Neglected Tropical Diseases (Global Network) and the Sabin Vaccine Institute traveled to Berlin to meet with Members of Parliament, German NGO partners and the media to inspire action on the promises to combat neglected tropical diseases (NTDs), made during the G7 Summit held in Germany this summer.
The Global Network, which is committed to seeing the end of NTDs — a group of 17 diverse diseases with distinct characteristics that thrive mainly among the poorest and most marginalized populations — works with partners around the world toward achieving this mission. The momentum to combat these debilitating and disfiguring diseases continues to grow and, during the G7 Summit at Schloss Elmau in June, Germany elevated the profile of NTDs by making “neglected and poverty-related diseases” a key topic for discussion.
The city of Berlin has a unique historical connection to NTDs; it was in Berlin 10 years ago that scientists, the German government and implementing partners first came together and coined the term “NTDs,” an important milestone in defining a collective response against these diseases. Germany is also home to the Institute for Tropical Medicine at the University of Tübingen where two 19th
During this most recent visit to Berlin, the Global Network’s Dr. Maria Elena Bottazzi, participated in one-on-one meetings with Members of the German Bundestag, discussing short- and long-term goals surrounding disease elimination. Globally, nearly 1.4 billion people, including more than 500 million children, are at risk from NTDs and require treatment. Medicines are generously donated by pharmaceutical industry partners, however, the value of the donated drugs is not enough to combat NTDs if the funding falls short to ensure their delivery to communities who need them most.
It is fitting that a decade after pivotal meetings in Berlin created the term “NTDs,” the focus is once again on Germany. The G7 Leaders’ Declaration, published at the culmination of the summit, offers hopeful news for communities across Africa, Southeast Asia and in Latin America and the Caribbean, most marginalized by NTDs by promising to “invest in the prevention and control of NTDs in order to achieve 2020 elimination goals.”
An immediate increase in financing for NTD treatment and prevention programs is essential to build on the progress achieved so far. Opportunities to eliminate elephantiasis, river blindness and trachoma are nearly within our grasp. Countries worldwide, including the G7 nations, can play an important leadership role by helping to close this annual funding gap of US $220 million. If we fail to act now, not only will we reverse many milestones achieved, but one in six people across the world will continue to suffer unnecessarily from NTDs, held hostage in a cycle of perpetual poverty and inequality. Moreover, failure to act now will undermine the efforts of the G7 to demonstrate their accountability and effectiveness as a group.
We certainly applaud the German government for her bold steps taken on behalf of NTDs this year, and we will be watching this week on October 8th and 9th as the G7 ministers for health and research meet once again in Berlin to discuss next steps.